18 dec

Variable manifestations, diverse seroreactivity and post-treatment persistence in non-human primates exposed to Borrelia burgdorferi by tick feeding

Variable manifestations, diverse seroreactivity and post-treatment persistence in non-human primates exposed to Borrelia burgdorferi by tick feeding

The efficacy and accepted regimen of antibiotic treatment for Lyme disease has been a point of significant contention among physicians and patients. While experimental studies in animals have offered evidence of post-treatment persistence of Borrelia burgdorferi, variations in methodology, detection methods and limitations of the models have led to some uncertainty with respect to translation of these results to human infection.

Late Disseminated Lyme Disease: Associated Pathology and Spirochete Persistence Post-Treatment in Rhesus Macaques. – PubMed – NCBI

Am J Pathol. 2017 Dec 11. pii: S0002-9440(17)30894-5. doi: 10.1016/j.ajpath.2017.11.005. [Epub ahead of print]

 

 

 

 

 

 

 

19 okt

Controversies in Persistent (Chronic) Lyme Disease

Controversies in Persistent (Chronic) Lyme Disease

The volume of evidence supporting persistent infection is substantial. Persistent infection has been demonstrated in patients with Lyme disease by polymerase chain reaction (PCR) and culture.48–58 An NIH-sponsored xenodiagnostic study in humans documented that uninfected ticks acquired B burgdorferi deoxyribonucleic acid (DNA) from feeding on a persistently symptomatic patient who had been treated for Lyme disease more than 1 year earlier. This finding is significant.

Controversies in Persistent (Chronic) Lyme Disease

The Centers for Disease Control and Prevention estimates that more than 300 000 new cases of Lyme disease occur each year in the United States and that 10% to 20% of these patients will remain symptomatic despite receiving appropriate antibiotic therapy. …

 

16 okt

First Officially Recognized Report on Violations of Lyme Patients’ Human Rights is Released

UPDATING ICD11 Borreliosis Diagnostic Codes – First Officially Recognized Report on Violations of Lyme Patients’ Human Rights is Released

For more information, contact Jenna Luché-Thayer

email: jennaluche@gmail.com

I have some exciting news about our report that was submitted to United Nations!

As you may know, I founded an international Ad Hoc Committee of scientists, medical professionals, human rights experts and patient advocates to document the human right violations experienced by Lyme and relapsing fever borreliosis patients.

This report, UPDATING ICD11 Borreliosis Diagnostic Codes, was submitted to the World Health Organization and the United Nations Human Rights Council’s Special Rapporteur for health and human rights.

The Special Rapporteur then invited our team to Geneva, Switzerland to testify on the human right violations experienced by Lyme and relapsing fever borreliosis patients. The human rights violations include the obstruction to treatment options that meet international standards for clinical guidelines and the denial of coverage for many serious complications and disability caused by Lyme borreliosis.

The report was entered into record by the Special Rapporteur – this is the first officially recognized documentation of the human rights violations experienced by this patient group.

UPDATING ICD11 Borreliosis Diagnostic Codes :

(1) describes the nature of these abuses

(2) details how the WHO’s outdated diagnostic codes —known as the International Classification of Diseases (ICD) codes— for Lyme and relapsing fever borreliosis contribute to these violations

(3) provides the peer-reviewed science concerning the many complications from Lyme, including those that result from latent and seronegative infection

(4) describes how the codes need to be updated—the updates should follow same ICD code logic used by WHO for syphilis, a similar spirochetal infection that has many of the same complications including congenital transmission and systemic complications that may disable and be fatal

UPDATING ICD11 Borreliosis Diagnostic Codes is now available for purchase of $25.00 (plus shipping) on CreateSpace eStore and will be available on Amazon Europe and Amazon.com by October 19, 2017.

We are an entirely voluntary organization – all proceeds from the sale of this report will be used to support our on-going efforts.

Please know I also have some videos that further describe what these efforts mean … and will release another video on how this report is changing the understanding of the epidemic.

11 sep

Dr. Neil Spector Speaks at Focus on Lyme 2017

Top Lyme Awareness door Dr. Neil Spector, top kankerspecialist in US, en Lyme ervaringsdeskundige. Hij moest een harttransplantatie ondergaan door Lyme Disease. De diagnose bleef lang uit, en hij werd lang niet geloofd door zijn collega’s, zoals het voor de meeste patiënten het geval is. Hier spreekt hij over wat er kan gedaan worden voor Lyme Disease Awareness en het onderzoek ernaar, wat in tegenstelling tot kankeronderzoek, totnutoe summier is.

Dr. Neil Spector Speaks at Focus on Lyme 2017

Dr. Neil Spector-one of the top cancer researchers in the US-suffered from misdiagnosed Lyme disease for many years. Although he was eventually diagnosed and treated for Lyme, by then his heart was so damaged, he needed a heart transplant. He chronicled the experience in his memoir, Gone in A Heartbeat: A Physician’s Search for True Healing.

05 sep

Empirical validation of the Horowitz Multiple Systemic Infectious Disease Syndrome Questionnaire for suspected Lyme disease

Empirical validation of the Horowitz Multiple Systemic Infectious Disease Syndrome Questionnaire for suspected Lyme disease

The results consistently demonstrated that the HMQ accurately differentiated those with Lyme disease from healthy individuals. Three migratory pain survey items (persistent muscular pain, arthritic pain, and nerve pain/paresthesias) robustly identified individuals with verified Lyme disease. The results support the use of the HMQ as a valid, efficient, and low-cost screening tool for medical practitioners to decide if additional testing is warranted to distinguish between Lyme disease and other illnesses.

 

Empirical validation of the Horowitz Multiple Systemic Infectious Dise | IJGM

Empirical validation of the Horowitz Multiple Systemic Infectious Disease Syndrome Questionnaire for suspected Lyme disease Maryalice Citera,1 Phyllis R Freeman,2 Richard I Horowitz2 1Department of Psychology, State University of New York at New Paltz, New Paltz, NY, 2Hudson Valley Healing Arts Center, Hyde Park, NY, USA Purpose: Lyme disease is spreading worldwide, with multiple Borrelia species causing a broad range of clinical symptoms that mimic other illnesses.

 

HMQ for Lyme disease – Video Abstract ID 140224

Video abstract of original research paper “Empirical validation of the Horowitz Multiple Systemic Infectious Disease Syndrome Questionnaire for suspected Lyme disease” published in the open access journal International Journal of General Medicine by authors Citera M, Freeman PR, Horowitz RI.

 

12 aug

European Centre For Disease Prevention and Control (ECDC) erkend lyme als ernstige bedreigende infectieziekte

Een document waar Lyme Disease/Borreliosis, tularemie, tekenencefalitis (alle tekenbeetziekten) door het europese center for disease prevention and control worden erkend als ernstige bedreigende infectieziektes. Late Lyme wordt als dusdanig nog niet vermeld, maar dat moet ooit volgen.

Link

Diseases were selected according to the definition of ‘serious cross-border threat to health’ from Decision 1082/2013/EU on serious cross-border threats to health: ‘life-threatening or otherwise serious hazard to health of biological […] origin which spreads or entails a significant risk of spreading across the national borders of Member States, and which may necessitate coordination at Union level in order to ensure a high level of human health protection’.(p19)

29 jun

Human Rights Violations of Relapsing Fever and Lyme Disease Patients Under International Investigation

Een rapport aan WHO dat gaat over schending van mensenrechten bij mensen die leven met Lyme Disease en Relapsing Fever, resulteerde in een meeting met UN human rights watch afgevaardigde, medici, wetenschappers, advocaten om de situatie te onderzoeken. Dit is pas het begin van de acties. Overal ter wereld waar dit gebeurt, zal gerapporeerd worden. Dat is alweer een grote stap vooruit! Lees hieronder verder. Nuttig artikel om te bewaren!

”Human Rights Violations of Relapsing Fever and Lyme Disease Patients Under International Investigation
A report submitted to World Health Organization resulted in a meeting between a United Nations Human Rights Council Special Rapporteur and medical professionals, scientists, human rights experts and advocates on June 7, in Geneva, Switzerland. This meeting focused on the violations against persons living with borreliosis infections, such as relapsing fever and Lyme disease.
According to Ad Hoc Committee and Global RBCC founder Luché-Thayer, this is just the beginning of their actions. “We will report any government agency, medical board, medical society or health insurance company that interferes with these human rights, said Luché-Thayer. “We are stakeholders with a global reach and an international presence and the Special Rapporteur has the mandate to investigate all these abuses.”

Human Rights Violations of Relapsing Fever and Lyme Disease Patients Under International Investigation

FOR IMMEDIATE RELEASE June 27, 2017 Contact author: Jenna Luché-Thayer EMAIL: jennaluche@gmail.com Human Rights Violations of Relapsing Fever and

 

05 jun

Maladie de Lyme : épidémie ou psychose? – Enquête de santé le documentaire

Le documentaire “Tiques, la grande traque” de Stéphanie Rathscheck, diffusé le mardi 30 mai 2017 dans l’émission “Enquête de Santé” sur France 5.

Maladie de Lyme : épidémie ou psychose ? – Enquête de santé le documentaire

Tout commence par une promenade en forêt. Cachée dans les herbes, la tique guette sa proie. La proie, c’est vous ! En mordant, le parasite peut transmettre une redoutable bactérie, Borrelia burgdorferi, responsable de la maladie de Lyme. Le début du cauchemar pour des milliers de malades infectés sans le savoir.

Maladie de Lyme : épidémie ou psychose ? – Enquête de santé le débat

Tout commence par une promenade en forêt. Cachée dans les herbes, la tique guette sa proie. La proie, c’est vous ! En mordant, le parasite peut transmettre une redoutable bactérie, Borrelia burgdorferi, responsable de la maladie de Lyme. Le début du cauchemar pour des milliers de malades infectés sans le savoir.

 

08 apr

De week van de teek – info over teken & tekenbeten

Benieuwd wat je kan doen om een tekenbeet te voorkomen en wat je (NIET!) moet doen om zo’n vies monstertje te verwijderen ?
Check dan deze informatieve video (mèt vermelding van chronische lyme!) :

De week van de teek

Kijk de hele aflevering op: http://www.rtlxl.nl/#!/gemist/rtl-weer-215961 RTLZ Weer Opmerkelijk 3 april 2017 Website : http://www.rtlxl.nl Facebook : https://www.facebook.com/RTLXL Twitter : https://twitter.com/rtlxl Nieuwsbrief : http://www.rtl.nl/service/xl/nieuwsbrief/